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In the News

Newborns Addicted to Opioids Given Drug Treatments Despite Lack of Evidence 

3/28/2016

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Kaiser Health News describes current treatment practices for babies born addicted to opioid drugs, despite lack of research or Food and Drug Administration (FDA) approval. Currently, the American Academy of Pediatrics and others recommend treating addicted babies, also known as neonatal abstinence syndrome, with opioids such as morphine and methadone because "you’re giving them back what they’re withdrawing from." 

However, chief of newborn medicine at Tufts’ Medical Center, Dr. Jonathan Davis, says no one’s really done the research to determine which drug works better for babies, and doctors are left to figure that out by trial and error, case by case. Though the FDA hasn’t officially approved morphine or methadone for use in newborns, doctors prescribe these drugs to the children anyway, in smaller doses than they give adults.


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Webinar: The Need for New Therapies in the NICU and What You Can Do to Help

3/23/2016

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On Wednesday, March 23, experts and advocates convened for a webinar to discuss the pressing need for new neonatal medications.  Specifically, speakers examined the promising policy developments that may offer a way to solve the challenge of encouraging the development of drugs for our nations newborns.

The diverse panel discussed the difficulties in neonatal drug development and the legislation currently moving through the U.S. Senate, The Promoting Life-Saving New Therapies for Neonates Act. In conclusion, the panel encouraged stakeholders to use this simple form send a letter to their Members of Congress urging them ​to cosponsor the legislation.   

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Author of From Hope to Joy Blogs About S. 2041 Capitol Hill Briefing Experience 

3/3/2016

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On Monday February 22, 2016 I had the honor of speaking at a Congressional Briefing on Capitol Hill in Washington D.C. in support of the “Promoting Life-Saving New Therapies for Neonates Act”. It was such an amazing experience. I spoke for ten minutes about my daughter and her time in the NICU and what her life is like now and then I ended by asking our nation’s lawmakers to support Senate Bill S.2041.


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